My Brother's Heart is a lighthearted true story based on a big sister's perspective about her little brother's special heart. Connor was born with an undiagnosed heart defect, hypoplastic right heart syndrome, transposition of great arteries, and a double inlet left ventricle. After more than four weeks at home with his family and loving sister, Madison, she couldn't understand why he had to leave to have life-saving open-heart surgery. My Brother's Heart is the story of Madison's experience while her baby brother, Connor, was in the hospital recovering.
This triumphant and heartfelt story plays out with a miraculous ending and an unbreakable bond built by love and faith. What would you like to know about this product? Please enter your name, your email and your question regarding the product in the fields below, and we'll answer you in the next hours. You can unsubscribe at any time. Enter email address. Welcome to Christianbook. Sign in or create an account. Search by title, catalog stock , author, isbn, etc. Homeschool Savings. My Brother's Heart. By: Laura Rothgery.
Wishlist Wishlist. Special kids deserve special siblings :. Lisa, I also have a son with Cornelia de Lange Syndrome. He has and older brother and sister, and a baby brother who was a surprise. The love and compassion that are built within these siblings is amazing. His 10 year old brother begins singing a Barney song and Blake just laughed and laughed.
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- An Open Letter to the Woman Who Has My Brother’s Heart.
He forgot why he was upset to begin with. Just awesome! A memory stowed in my heart forever. The time that gets lost to these wonderful siblings is a guilt I think we feel only. I truly believe in my heart they are fine and happy with the way things are. Keep being the supermom we both know you are. So much love!! Oh, and I wanted to tell you my friend sent me this article…she thought she was looking at a photo of Blake and wanted to know who was with him. Love our CDLS babies!!! Lucy is 3. My other kiddo, Lainey, is 5, and has knowledge, compassion and kindness well beyond her years.
He said that siblings tend to be more compassionate, understanding and accepting- and they usually go on to make a difference in the world. It sounds like your Matthias is well on his way to doing just that. I am so thankful that Lucy has a sibling like Laine, and visa-versa. Our family, too, is perfectly imperfect. Thank you for sharing your family with us. We think the tulips and windmills are simply lovely. I have a special child He is 39 now and has been in a wheelchair since He had friends through school that took care of him.
When anyone gave him trouble they were there to take up for him. Never had a brother or sister but others took up for him. Just give him all the love you can for tomorrow he might not be there. I was attacked by my fiance of 6 yrs and almost killed in my home.
He went into a drunken rage one night and beat me in front of my 10 yr old son. He had never done anything like this. My son stabbed him one time and he later died. To say this has been hard to process is an understatement. My father gave me this necklace a couple of years ago and he had no idea the meaning behind it. My brother and sister both have ectrodactyly syndactyly syndrome and I understand where your oldest is coming from he just wants to protect him from a world of judgement.
I have a beautiful adult niece with Down Syndrome. She has taught our entire family many things: lessons about acceptance, living in the moment, and loving unconditionally. Many blessings to you and your family, Lisa. I understand my older brother is hydrocephlic and myself being the youngest I knew he was different at a young age and have always been overprotective of him. Especially when others state or make rude comments. What amazing parents you both are.
By the pictures you have posted David looks loved in everyway, as does Matthias, whom also has great compassion for others. I have 4 beautiful children of the 4 I have two who have had to endure difficulties. My daughter Kellie has a heart issue that. Doctors have tried to control with medication and surgery, only time will tell.
And then there is my daughter Katie, who was anorexic, what a very hard battle that disease is. We are coming out on the other side! Thank you for always sharing and for your beautiful jewelry and for raising two very special sweet young men. You are doing an amazing job with both boys! Beautiful jewelry, too! Your jewelry is so inspiring, and I love every piece from you that I have. Empathy and compassion are personified in your sweet Matthias. What an awesome human being he is already, at 12 years of age, he has the heart of a 75 year old with a lifetime of memories to root through.
Congratulations on doing such an awesome job raising these 2 beautiful souls.
You Didn't Win: An Open Letter To The Girl Who Broke My Brother's Heart
God bless your boys! Thank you for sharing your life with us and allowing us to see all the love within it. We have four disabled children, two of them are now with Jesus. I think that God must look at us that way. Thank you so much for this post. And you are right — outings are usually a three-ring-circus! One has cleft lip and palate with hearing issues from time to time, another has Apraxia, another has Klippel Trenaunay Weber Syndrome and the last is half blind in his left eye.
But they all will go to the mat for one another. They know how to really be there for each other. They know we scramble to go to all their appointments and each pitch in. And sometimes I have to say God Bless technology for the help but I feel so blessed that I was chosen to be their Mom. We all, as humans, have our own idiosyncrasies, needs, etc. It makes all of us special and perfect, just the way we were meant to be. When our son was born our daughter was a little over 3 years old. When our son stopped breathing for the second time it was in the middle of the night.
As I was running up the stairs with him she must have woken up. I did not realize until weeks later that she had heard me. Then one one day she repeated. Well today she is 21 and is doing missions work over seas. I guess God knew all along what she could handle. Outing may not always work out and Dr visits may be long but our kids are strong and their insight is amazing. Keep up the good work moms and dads. God Bless you all. Thank you for sharing! This is beautiful. When I was 6 months old, my family was in a car accident that left me with a spinal cord injury and paralyzed from the waist down.
Not that any of my family ever would have called me a burden, but I knew that medical bills added up and that I needed more help and attention than the average child. But my brothers never once complained. My being in a wheelchair was always a non-issue to them. They were, and still are, fiercely protective of me. Someone once called me crippled, and my brother punched him.
I also learned, years later, that my one brother gave a presentation about me for a class project that required him to talk about someone he admired. They used to fight over who got to push me around when I needed help, and I used to spend hours pulling them around on skateboards while they held on to the back of my chair. We sat on the floor and used my wheelchair to make blanket forts, or pretended that the wheels were steering wheels for a huge ship.
I am sure there are times that they were sad about the circumstances, about the fact that sometimes my parents were required to give me more attention, but they never once showed it. My brothers are good people, but I believe that my disability made them even more patient and compassionate towards others.
Now we are all in our 20s, except for the youngest brother who is 16, and we are all closer than ever. I am extremely lucky. I keep telling my husband I want one of these necklaces because I really like them but now that I know the story I want one even more because of the background because we are adopting 2 special needs 9 year old children from China. These kids mean the world to me already. I think Special children will always create a special spot in my heart. Beautifully said. Your sons are blessed to have you as their mom.
As the sister of a low functioning woman with autism, these stories always tug at my heart. Please make time for your typical son and realize he needs you even more. Support groups with other kids in a similar situation would be invaluable. Take care on your journey. I have a sister with cp and microcephaly. She is 2. I remember people always starring, especially at her leg brace. I would be so upset because like your Matthias, she was just Suzi. She was my sister. I was protective. She was a difficult child and often times I was jealous of the attention she got and what special things she could do, but I was never angry at her or my parents.
I became the person that I am because of God placing her in my life. I learned about compassion. I learned to never let anything stop you from pursuing what you do. I learned to keep going. I learned to appreciate the ability to learn. And I learned to love so much deeper. Having a special needs sister changed my life…for the better. Your boys will accomplish marvelous things! It is so hard to see your child struggle!! My son was born with Spina Bifida and has had multiple surgeries, month long hospital stays , as well as endless doctors visits.
But I can tell you that he has grown to be a man of compassion and acceptance and I believe it is because of that struggle. As we have encountered other families that have experienced SB, we have always observed that the siblings of the special needs child are these amazing humans that exude all the character that we admire…kindness, gentleness, and patience.
May God richly bless them all!! My situation is not quite the same, but I feel like I understand the message. My 20 year old has been in and out of the hospital 5 times over the course of the last 8 months with a myriad of health issues and 7 surgeries. My 16yo and 12yo have been absolute champs about supporting their sister and being strong for me, but that never lessens the guilt I feel because I drop everything to be by her side and they have to fend for themselves. Thank you for your honesty. It is enlightening and helpful for those that read your story and can relate.
And when he was bullied in high school they were ready to take their middle school bodies up against the entire football team. Rob is an incredible 20 year old man and his brothers love him and are probably more compassionate than they ever would have been without such an extraordinary brother! I am the older sister to a brother with moderate Cri du Chat, a rare genetic disorder. When I was in middle school, I struggled with my brother getting all of the attention and extra care during outings, holidays, and special events.
When he would get excited during a band or theater performance and call out in a quiet moment, I would be mortified and hope no one knew. Time went on, and I grew out of my painfully awkward middle school years. I began to see my situation differently. As an adult, I can see the ways that my special needs brother influenced me to be a more caring person. I chose to become a middle school science teacher. I am a stronger person who is more mature than many of my typical same-aged coworkers. Only through experience of trial and suffering can the soul be strengthened, ambition inspired, and success achieved.
We proper know what are you talking about. We are a family with two lovely boys, 15 years and 4 years. But it put us more together as family, and it made him stronger. But it was never the situation to give up, no, but rather to look for solutions. I can relate to this on many levels. My older son has autism, epilepsy and intellectual disabilities.
Funny Birthday Wishes for Brother
My younger son has had to grow up so quickly in the past two years. I can so very much relate to this. To be honest, the hardest part of my journey as the mom of our youngest daughter with special needs might be watching her older sister learn to cope, understand and thrive despite the challenges. I pray that in the long run, God will produce in her the abundant harvest of compassion and empathy that can only come through suffering. I am the oldest of a family that adopted kids with hidden special needs. There will be meltdowns and hurts. Thanks for sharing this.
Would love your feedback on how we can better serve these kids. We are on Facebook or the website ProjectRestoringFamilies. I can relate so much to this post! We have 4 children and 2 of them have special needs. I often am concerned about how the unique needs of our two girls affect our two boys who are typical kids.
I agree that we want to protect our kids from any hurt or discomfort, and yet I also believe that there is something so amazing about all of our kids having each other to learn and grow in ways they would not without each other. I could go on and on about this … in the end, I am so glad that my boys will learn valuable lessons in our home and become such compassionate and patient people because of their sisters. We already are seeing that in our little 20 month old … he is so patient and content when we have to deal with a meltdown or other demanding behavior from his sister with autism.
It is so heartwarming and amazing! Loving and learning every step of the way …. I have walked a path that is not for the faint of heart as you have Lisa. Adoption has been that path for me and as the days become years you realize how the decision has changed our lives forever. In so many ways for the beauty of life redeemed.
And then in some ways also so very heart breaking. As a mother you do all you can do and you ask God to help you with the rest.
Brothers By Heart
And then I have to rest in that. Today I am in the God taking care of some stuff for me phase. Bless you in your journey. Thank you for being willing to share it with us. Your words are beautiful. I loved that you shared this. My daughter is 13 and her brother She has the same kind and protective heart. She is so proud of her brother who has special needs blindness, developmental delays, etc. She has adored him since she was born and has never been embarrassed of having a sibling with special needs. I always tell her she was meant to be his sister and he her brother.
You Didn't Win: An Open Letter To The Girl Who Broke My Brother's Heart
This type of love is the best kind. We do acquire all the positive characteristics mentioned in these posts but later on as adults is when it hits us. I only wish I had more support as a child. It really makes an impact when you have kids of your own and look back on our childhood. I am still as an adult envious of the attention my sister gets.
Have you ever considered writing a book?
It could bring healing to so many living this journey.. I love this. I see how the Lord has given you two — not one — treasure in your boys. They were given to you to grasp in love and understanding. I am in awe of our Lord as you write into our hearts the little treasure you carry with you. We struggle with this everyday as well. My daughter will be 12 tomorrow and she is truly an angel. She is a simply amazing big sister to her little brother and I love how you noted Matthias is so protective of David…it made me smile thinking of how my daughter is with my son. Friday I am going to watch her deliver a presentation on why children with Autism should be in general education.
This is something she volunteered to do. She is going to use her knowledge and wisdom gained through having a sibling with a disability and turn it into her passion one day. Disabilities are truly a family cause, and finding some sort of balance is always a challenge. Your son has learned at an early age that life can be hard and unfair, but that it can be met with grace.
Children like that grow into adults who are compassionate and empathetic. Which is what our world needs. I prefer to see them all as angels with special abilities. They give us the opportunity to grow into a kinder more loving human being…if we choose that path!