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Wisconsin No matter your need, find expert emergency care, heart care, imaging services, and home care near you. She was convinced that everything I experienced was related to puberty stress. However, when the symptoms continued long after puberty and even multiplied, she insisted they were due to the stress of college.
Many of these symptoms were serious red flags like unexplained weight gain, insomnia, depression, very dramatic mentrations and the delays between them, unexplained periods of extremely high blood pressure, etc. I rarely ever get anxious about anything without due cause, and these were very serious symptoms that needed to be addressed. So, to be labeled as someone with GAD was an incredible insult to both myself and people who truly suffer from it!
It was a humiliating experience that I never want to go through again! He prescribed them and it helped so much. In addition, I am forced to fill out a long survey about my smoking every time I go for a visit. I have to listen to some young girl lecture me about smoking for ten minutes before seeing the doctor on every visit as well. I have already had a doctor misdiagnose me. Thank god my child does not have it! This doctor totally dismissed my symptoms because I am a smoker. Can I sue my current doctor for discrimination? Punishing me does not encourage me to quit.
Do the folks with diabetes get a survey on how many bags of chips they eat? Do diabetics get medication withheld that could relieve their suffering? Does some 19 year old come in and give them a lecture on putting down the fork? Just wondering…. Good points. Health care by robot automatons. By electronic medical record prompts and algorithms. Generally you have to prove a bad outcome due to deviation from community standard of care. Assembly-line medicine is not health care.
Thank you for caring enough to just talk about this subject. Please stop assuming every patient is drug seeking, lying, uneducated, homeless, overweight, a wife beater, a child abuser or beneath you, simply due one fact…they did not walk your path. Your path of opportunity. They all will be a patient one day and if there is justice they will remember every patient they misjudged and mistreated.
We never intended to harm anyone. We came to medical school just wanting to help people. Sadly, we were dehumanized in our training and abused. Hey, I am an other statistic. I have been in chronic pain for fifteen years, Pudental Neauralgia and IC. Nerve pain can not be seen by the naked eye nor the best X-Ray equipment.
Every doctor acted the same, dismissive, looked at me as if I was a pill instead of a human being who needed support. I received no medication. My anxiety heighten every time I had to see a physician. My fear of mental abuse keep me away from clinics, even when I needed help.
My anxiety got so bad I could not stand, becoming weak and numb. I finally made an appointment, hopeful for some guidance, the whole visit I sobbed uncontrollably. She told me to do yoga, and said I was to complicated for the clinic. I was dismissed with no medication or any direction. I was devastated! I can not stop crying, feeling abandoned. I am seeking a phychiatrist hoping and praying he will help me. We all need to talk about our experices to support each other. Remember you are not alone. Write your State Senator to help pass a law against physicians profiling and discrimination.
We have a disease of chronic pain that needs support, compassion, understanding, and Love. I am in a situation now my health is being neglected. I recently got my disability because I have such severe neuropathy I fall, I want feel my feet and I will just fall. These are not even the only medical problems I have.
But I had a doctor for near 20 years had me on strong pain meds for the problems. I had a good job and Insurance. Then I lost my job and I fought for 3 years to pay for my Insurance under cobra. And then lost out my unemployment stopped. Well In the meantime I was loosing everything my trailer my car got repossessed. And had to move into a hotel well both my daughters were living with me and we had to have an apartment type suite so I had to have a boarder to share expenses so I let a friend of mines daughter also live with us she was 29 just like my married daughter and my youngest was almost Well one of them or there friends stole a zanax RX from me and even though I was going to prosecute my own family, I had police report and turned it over to the FBI not only did the doctor cut me off and also did not take me seriously neither did the FBI.
So I have been through hell even getting my disibility. Thank god I did. But the doctor that helped me was 90 years old and retired. He referred me to the pain clinic at this county clinic that is for less fortunate and I was treated kindly at first he retired and within 6 months I was discharged out of the clinic. Mine is a long story and this is only a short portion of it. But I am starting to think I am crazy and need to see psychiatric help. And this is very serious and true. Thanks for Listening Donna in Birmingham. You are not crazy Donna!
This past November after 25 years of trying to get a diagnosis for the low back and hip pain I had been experiencing along with constant GI issues, I was diagnosed with Ankylosing Spondylitis, Inflammatory Bowel Disease, Ehler Danlos Syndrome, and Fibromyalgia.
I have lost joints due to fusion. There is still a preconceived notion among Doctors that women cannot have AS. I have been prescribed anti-depressants to deal with what I know now is an autoimmune disorder, and a genetic condition that allows too much space in my joints which causes constant pain. I do not even ask for opiates due to the stigma attached to it anymore. I have had pharmacists refuse to fill my scripts. I have had emergency rooms refuse to prescribe anything stronger than Tylenol. If Tylenol worked I would take it and never need medical intervention.
I have given birth to four children and that did not hurt worse than a AS flare. It is a sad day when Doctors who swore an oath to do no harm are more concerned of a malpractice suit due to narcotics than actually caring for the patient in front of them. It is a sad day when patients are required to urinate in a cup to receive medication. No other class of patients are required to submit a urine screen to obtain their meds. Some medications are equally as addicting. It cannot but appear we are profiled and targeted.
For me it would be easy to obtain verification through my medical records that I do indeed have a condition, infact several, that causes chronic pain. I know enough to make sure I see the same doctors for my conditions. I go to the same pharmacy yet I know I am in a database identifying me as an opiate user.
No other information as to diagnosis or medical history is in that database. A pharmacist has the power to deny me the medication prescribed by my Doctor based solely on this information. It is such a frustration to be chronically ill, have chronic pain, and be treated like an addict. That is why I started the Ankylosing Spondylitis Project and we work with another group, Patients not Addicts, to attempt to change this. Doctors need to hear us. They need to see us as patients with underlying medical conditions.
They need to fight for us and with us. We need them. We also need to be treated like patients. The current status of our medical system is a heart beat away from negligence. People will die either by their own hands or by a system that is set up to judge them before treating them.
Currently there are million chronic pain patients in the US. Furthermore, alternative medicine to treat chronic pain often is not covered by insurance. Physical Therapy for an incurable disease that I am restricted to just 5 visits a year. It is like the CDC did not even think about the repercussions of their own guidelines. That forcing people off medication that they did well on, with no history of abuse, would likely send people to meets with drug dealers willing to prescribe Heroine.
Congrats to the CDC they just made drug dealers a lot richer. THis is often the problem with prohibition type laws and guidelines. Those guidelines were also full of misleading and false data. It ends up pulling the cart before the horse. Less than 5 percent of chronic pain patients abuse their meds. So who are these guidelines targeting? They will have the exact opposite result because most people abusing opiates are not buying them legally anyway. That is the most frustrating thing about this. Also Doctors should be angry- as we are moving away from patient centered care.
My son is severely disable with Ankylosing Spondilitis. I knew he had the same thing I had when he buckled over while dining in a restaurant. I had no idea it was hereditary. When I was in teens I was informed by a GP that if I ever stopped moving I would be in a wheelchair within a few years. Physiotherapy and dance kept the worst at bay for me, but since the cancer surgery the chest tube was left in for nine weeks I have some serious issues. No one will listen.
They refuse to believe me. Overweight patients get profiled all the time. She was complaining of hip pain. Her doctor told her to lose weight and exercise. Finally tests were done but by then the cancer was extensive and she died 7 months later. I always wondered if she had been a thin pretty young thing if she would have had a different outcome. I also have been overweight my entire life. My weight varies 20 up, 20 down. I am active and work steady.
I ride my bike, eat healthy and at 61 have no medical problems except my tendency to be a larger woman. I have mitochondrial disease. Pain is also a huge issue with mitochondrial disease and it was very hard to get pain meds and I was often treated like a drug addict. I have many needs as a patient with mitochondrial disease and very little assistance from the medical community.
It makes me want to scream. I have had a patient with mitochondrial disease. I had to read a lot about it, but I really enjoyed taking care of him. Hope you stay curious and keep trying things. I was told I had mitochondrial disease by a colorado Neuro. I moved to florida this year and found a new Neuro whom I had called and asked if he would take me as a patient.
He started me on mito cocktail. I saw him this week and after asking how I was doing, I told him I was still choking and had hand weakness making the use of my cane difficult. He also bullied me because I keep refusing cymbalta for pain. Telling me if I was really in pain I would take something. I will never see another Neuro again. I sometimes frequent the Er for multiple health problems.
To later find out I have endometriosis which was causing my pain and excessive bleeding not a UTI. I then after having the endometriosis was back to visiting the hospital for pain in my lower abdomen and was given multiple pain meds because that is what they thought I had wanted. In result of the multiple pain meds I miscarried the child I was carrying and was implanting which was the result of the pain.
Another time I was profiled I was in psychiatric unit after trying to commit suicide. I felt it was the only way away from my abusive ex husband. While there I was given geodone an anti psychotic and ended up having a hard time swallowing uncontrollable movements of my tongue and my mouth was in a permanent smile.
I found out I was allergic to the geodone. This is so sad. I am very sorry. Sharing these stories is the first step to raising awareness. Justina, thank you for being willing to tell your story. In I became ill. At our first meeting, he noted that I had lost a significant amount of weight recently due to a gall bladder that had simply stopped working and subsequently been removed. In the months that followed, I was properly diagnosed with an auto immune disease and Fibromyalgia. Because of this man, I no longer include information about my mental health on medical histories.
Patient profiling is too real to risk it again. It is true that your medical records follow you from doctor to doctor. There can be erroneous information in the records that should be amended. It is a good idea to read your own med records every once in a while just to make sure things are presented correctly. As in any human interaction, there can be miscommunication, misinterpretation.
There is another lady with my same name in town and our records have gotten confused on several occasions. I find it extremely scarey info that was erroneously included will impact my future health care. This doctor and that doctor is sending each other reports so what do you suggest is best to do in this situation? Have you found amending them to work and how best to approach it? Thank you for your lovely blog and fresh ides for being a physician. My dad was a solo practitioner and kept his home phone number in the book. He got calls emergency every Xmas morning and dutifully went off to the hospital.
He got emergency calls every Xmas morning and dutifully went off to the hospital. Thank you for your lovely blog and fresh outlook on being a physician. Ad you middle name to your chart or your maiden name or something. VERY important. It would be dangerous not to do so. You need to have your records accurately reflect who you are.
He would not even look at test results from pain clinic and said that was not his field. The pain clinic did thirsting that proved I needed help with extreme triglycerides. He did prescribe medication but later visits said he had ordered testing. I saw many errors in my documentation from his office regarding these issues and he argued with me and said His records show it so it is true.
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But the records were written incorrectly. The Social security administration perpetuates these problems by not allowing testimony from real people in work place and home that truly see your decline not a doctor that turns in erroneous reports and could care less if you can feed your family because you miss so much work due to multiple health issues…mine brought on primarily by Stickler Syndrome but the doctors never want to hear how my connective tissue disease means I need different or more attentive care than someone without a genetic disorder.
And nothing changes Pamela. The medical file is a legal document that does not permit of change. What would happen if doctors were faced with criminal as opposed to civil charges when wrong-doing has occurred? Is it feasible? I am 48 years old. At 42, I began to develop the initial symptoms of what over a dozen doctors, countless misdiagnoses, and thousands of dollars worth of tests would finally reveal…prolapse of my rectum, bladder, and uterus.
I had never heard of this condition. I did an exhaustive online search and was astounded by the articles that described my symptoms to the T. Thanks for giving me a chance to vent. Lisa Weinstein. Always therapeutic to write your story. And share it with your doctor.
This is how we learn — and heal. When I was 28 years old and recently pregnant with my third child, I had severe hyperemesis gravidarum and landed in the ER to get IV fluids. I was feeling pretty crummy and was not answering questions well as sick people often do. My husband was home taking care of our 1 year old and 3 year old, so I was alone.
A doc I had never met before was extremely short and rude with me, asked me if I was on medicaid and suggested I get an abortion for my unplanned pregnancy. My pregnancy was not unplanned, I was in a great marriage to my doctor husband, I have a degree from an Ivy league school, and had good private insurance.
Patient Profiling: Are You a Victim?
My problem was that I was very sick and I was young, so therefore my pregnancy must be unplanned and I must be on medicaid. Oh no. Did you ever give feedback to this doctor? Cultural competency classes are supposed to prevent this kind of thing, but there is nothing like learning from your own mistaken judgements.
Great teaching moment if you had not been throwing up. My 88 year old mother got shingles on her back. After the sores disappeared she still had pain, but it went on for a full year and the pain was excruciating! She was in to the Dr and emerg several times and they told her it was common and gave a pain prescription.
Finally someone thought to do a work up on her and it was discovered that she had a terrible kidney infection! The aged are far too often just given a pat on the head and sent home. My mother tried to treat an abdominal issue on her own for eight years. When I saw the attendants looking after her I was appalled and asked if anyone had bothered to check if there really was something wrong.
Guess what? Riddled with cancer. They never bothered to check out any of her complaints. She bled out. A terrible, lonely death. When my son was a baby he had colic and was in pain.. I am a patient with Crohns Disease, R. I have been on almost every medication available for Crohns. I am currently on Humira since september and was on Cimzia for 3 yrs prior. I still have uncontroled daily pain, nausea, diarreah, up to 12 to 15 loose stools a day. The fistulas are my main problem with bowel leakage daily, up to 8 to 10 pads a day and NO normal sex life.
A very good friend posted this article and I noticed that you are 50 min south of me. I live in a small town, Sweet Home, Or. I am desperate to find a P. Doctor that understands my situation. I do have a GI doc in Corvallis. He works hard to keep me going but we are running out of options. I could go on forever but my need right now is to find someone, anyone willing to work WITH me and not give up on me by saying those awful words …… There is nothing more we can do, you will just have to live with it! I am not that kind of woman to let those words keep me down.
I was hoping, praying that you might be able to help me? Are you accepting new patients and do you accept OHP? Thank You for this excellent article and any help you can pass along ……. Desperate in Sweet Home! I do not accept a few insurance plans, but I see anyone who wants to see me. I do not turn anyone away for lack of money. That is what I believe.
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Debbie- I wanted to put my comment here and hope that you read it. Or someone else with Crohns disease. I have had it at least 20 years and I have been on all of the biologics, etc. Wow, I related to what you said! First off, It made me ache. It went through its trials and I was almost part of the third but was too sick to want to maintain a high amount of prednisone that was required to maintain the integrity of the trial.
I started it a week ago.
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My blog is chronicling it. As far as ERs, Dr. Is there a Pain Management Clinic near you? If not, can you maintain some semblance of relief on the prednisone? That is like a swear word or someone running their nails down a chalkboard to your body but taking just enough to help. However, I am there with ya. Every system in the body is affected by Crohns. Joints, muscles, bone, eyes, ears, mouth, and nose! I have had wicked fungal infections that back up into those parts- And Iritis happens due to those muscles in the eye.
I hate being a Professional Patient. And a mom….. So sad. Bless your heart. Having a good friend, mentor, faith are all that become left when the well has run dry. Or talk.
Patient Profiling: Are You a Victim? | Pamela Wible MD
Or get help. May those around be in tune enough to reach you. I hope this does. I hope that Dr. I live a couple hours north of ypu Dr. Wible and it is so refreshing to hear that what I have always believed was true. I live in a small community Dallas, OR and we do have a small community hospital that is a branch of Salem Health. I have had it for almost 25 years now. I have had to go to our small community hospital because I now live with chronic pancreatitis that my GI dr. In going to the ER there is one particular dr. Come to find out, two of my friends have had the same kind of run-in with this same doctor.
She refuses to treat pain and accuses each one of us of being pain med seekers. I am a bag girl aka obese and that is one of the reasons I get treated like crap. This dr said that his answer for everything is methadone. It turns out, he was fired a month later and the clinic was closed down because of many complaints.
Thank you Dr. Wille for your apology on behalf of other ignorant drs. I pray that one day they will figure it out! Darcy I too have chronic pancreatitis since with 66 hospital admissions. I too have had ER horror stories. They get the ER is a joke! I know a bunch of people who have Kryptopyrrole disorder. Despite strange hemoglobin issues, and the presence of pyrroles in urine. I went to a mental health center for my eating problems in after having tried to deal with these problems on my own. I had lost weight and I had been binge eating.
It was the binge eating that scared me into getting help. I found out about anorexia by reading a book. I hoped that psych meds would stop the binge eating. I begged for these pills and was refused. I believe the only reason Lithium stopped my binge eating is because it suppresses the appetite. The weight gain people get from it masks the appetite loss in many cases. I was on Lithium for years and it ruined my kidneys.
Along with that, they coerced me into taking antipsychotics, which I never needed.
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All I got were devastating side effects from these pills. I have been profiled by doctors so many times I cannot count. I am a lot better off now. I want to go back to each and every one of them since and ask for an apology. My story is also too long to share here in a few paragraphs but the basics are that in the state of Oregon, over a six year period of time, I saw over 30 doctors due to intermittent, full-body paralysis; gradual, progressive muscle weakness; exercise intolerance; long QT heart rate; fluctuating heart and blood pressure rate and more.
After the majority of them misdiagnosed and mistreated me diagnosed with conversion disorder, prescribed anti-psychotic drugs, lied about me and symptoms in records, accused of being a drug addict, scoffed at, told I was too old to have a particular disease…. The type I have is the most rare and the most serious form, Andersen-Tawil Syndrome. On a cellular level, triggered by various things such as medications, IVs, anesthesia, sleep, wheat, salt and much more, potassium wrongly enters the muscles causing paralysis and more.
Our greatest fear is ending up in the ER where they do not listen to us and proceed to hook us up to IVs and make us worse or kill us. I had to diagnose myself. The doctors agreed when presented with the information, the facts, my symptoms and characteristics and after they did what I asked them not to do during a small procedure to insert a heart loop monitor: put me on a saline IV and give me lidocaine.
It sent me right into full body paralysis, long QT heart beat, arrhythmia, tachycardia, high blood pressure, breathing difficulty and choking for nearly two hours. They could do nothing but watch, at that point, knowing any medication could make me worse or kill me. I cannot tolerate the medication usually prescribed.
So, I help myself through diet, potassium supplements and avoiding triggers. Since my diagnosis, my husband and I have created an independent organization, the Periodic Paralysis Network. We help members from all over the world who can get no help from any doctors and hope to educate the medical profession about PP in hopes that others will not have to go through what I did and therefore end up as bad as I am and that doctors may be able to recognize, diagnose and treat PP appropriately in a timely manner. Thank you for offering those of us who have been so mistreated by doctors a place to tell our stories.
A gift from the universe, via you. I had a hysterectomy age After 3 months I decended into the hell of prolonged benzo withdrawal, but was still just seen as a crazy drug addict. All bc docs profiled me. But, here I am! Thank you for listening to people like me! Oh, I feel for you! I have refractory Interstitial Cystitis, and it has turned my world upside down.
I have had my bladder nerves surgically severed twice Ingelman-Sundberg Procedures , have a sacral nerve stimulator that failed, had a failed spinal stimulator trial, have an intrathecal pain pump with morphine, and was seriously looking at bladder removal when a good, cutting-edge clinic started me on Botox injections to my bladder, urethra, and pelvic floor for pain and frequency. I was treated like a drug-seeker, disbelieved, and humiliated. Once, the pain was so severe, I was admitted to the hospital and put on a PCA pump.
I was stunned and humiliated into silence. I wish now I could go back in time and let him have it! IC is terrible and not well-understood. Take care and know that you are not alone. Love it. I went to many many doctors with a mold allergy problem and not a single one was able to help find the disease, just threw an assortment of meds at me.
I was tested and diagnosed. Change classrooms in the school where I taught. Went from being near death to being near perfect in just a few months with no medication. I have Crohns disease and I have strictures in my small bowel as a result of years of active disease.
I have had quite a lot of my small bowel removed as well. I went into hospital for an operation and the morphine stopped my intestines working. I felt very nauseous and my stomach was very distended. I was in agony for days and extreme discomfort for days. Call, go online, or download the Best Doctors app to start a case and connect with your advocate clinician anywhere, anytime. Call or click below to get started.
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